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I was anxiously waiting for my name to be called in yet another poorly-lit waiting room. Doctor’s offices were once just an occasional means to an end: I went feeling shitty and I’d leave with a script from the omniscient doc to feel better. Now, they’re as common as my trips to the grocery store, […]
Read MoreMy particular IVIG dose goes on for 5 days in a row/ 5 hours a day so these suggestions may not be appropriate if that’s not your treatment plan. This list came about after 4 treatments, a few mistakes, and the experience of a couple very smooth treatments: 1. Stay Hydrated – I drink at […]
Read More“…But let there be spaces in your togetherness, And let the winds of the heavens dance between you. Love one another, but make not a bond of love: Let it rather be a moving sea between the shores of your souls. Fill each other’s cup but drink not from one cup. Give one another of […]
Read MoreMy body was breaking out in mysterious rashes. I’d discreetly lift a pant leg to reveal the repellant red rash and ask people what they thought. They’d say, “ Huh, that’s weird, but I promise you it’s no big deal.” Or, “Don’t worry so much.” Or, “Be positive. Have positive thoughts.” I was positive when […]
Read MoreThis week, I’m in my second of twelve IVIG treatments. Five days in a row, six hours a day, I’m receiving IV Immunoglobulin therapy. It’s really hard on my body. I’m writing to you with an IV in my right hand (I was too out of it to take the practical idiocy of this into […]
Read MoreSince the beginning of time, unclothed people of all races and all places were preaching what the Beatles put into pop music centuries later: “All you need is love, love, love is all you need.” Today the message is everywhere. It’s in the cliché, framed decors from Target, hanging in the hallway of many suburban homes, […]
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