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If you’re here looking for a quick-fix solution to Lyme disease, I will disappoint you. If you’re here because you’re googling in a desperate search for the way to “get better asap,” I will—sadly—disappoint you. I am a person that has a great deal of recovery from this disease and more to come, but the […]
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DreamWorks brought us Home, an animated film about an alien race called The Boov and their attempt to take over the planet. One unique Boov, named “Oh,” has no intention of cooperating with his species—he’s lovable, friendly, and kind: nothing can rob Oh of his innocence. I sat on my plane to Bali last year […]
Read MoreON THE BENEFITS OF STAYING CREATIVE THROUGH CHRONIC ILLNESS Robert Mapplethorpe, a photographer from the 1970’s well-known for his erotic imagery, nude portraits, and self-portraits, battled AIDS for three years before he died in 1989. He was a fearless photographer, crossing boundaries to create breathtaking prints. I’ve always admired his work, but when I went […]
Read MoreI was anxiously waiting for my name to be called in yet another poorly-lit waiting room. Doctor’s offices were once just an occasional means to an end: I went feeling shitty and I’d leave with a script from the omniscient doc to feel better. Now, they’re as common as my trips to the grocery store, […]
Read MoreMy particular IVIG dose goes on for 5 days in a row/ 5 hours a day so these suggestions may not be appropriate if that’s not your treatment plan. This list came about after 4 treatments, a few mistakes, and the experience of a couple very smooth treatments: 1. Stay Hydrated – I drink at […]
Read More“…But let there be spaces in your togetherness, And let the winds of the heavens dance between you. Love one another, but make not a bond of love: Let it rather be a moving sea between the shores of your souls. Fill each other’s cup but drink not from one cup. Give one another of […]
Read MoreIf you’re like me and terrified of any extra Mercury finding its way into your system then you are probably looking for special ways to introduce omega fatty acids into your diet without also consuming fish. Omega 3 and 6 are necessary, AND it’s not necessary to consume any kind of fish in order to […]
Read MoreFollowing up with last week’s post, this is an update of how it’s been going on the East Coast. In summary: better than expected! I’ve been almost myself. It’s been exciting to watch myself do a lot of the things that I couldn’t do even six months ago. Getting off of the plane last week, […]
Read MoreTHE PART OF GETTING WELL YOU CAN’T BE PREPARED FOR: I am red and dizzy, hot and overtired sitting at LAX waiting to board a flight to NYC. It’s my first time solo in an airport without wheelchair assistance in almost 2 years. It’s a flight that I’ve diligently avoided for over 2 years- unable […]
Read MoreIt was forty-six years ago that Marvin Gaye was wondering what the fuck was going on. People were coming back (or not coming back) from Vietnam having suffered terribly, drug-use was peaking, and police-brutality was a common response to young activists. But what’s forty-six years? There has been suffering, fighting, hate, and a whole lot […]
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